Medical Literature

  • Glioma Patient-Reported Outcome Assessment in Clinical Care and Research: A Response Assessment in Neuro-Oncology Collaborative Report

    Lancet Oncology

    2020 Feb;21(2):e97-e103

    Armstrong TS, Dirven L, Arons D, Bates A, Chang SM, Coens C, Espinasse C, Gilbert MR, Jenkinson D, Kluetz P, Mendoza T, Rubinstein L, Sul J, Weller M, Wen PY, van den Bent MJ, Taphoorn MJB
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  • Development of a Core Outcome Set for Use in Adult Primary Glioma Phase III Interventional Trials: A Mixed Methods Study

    Neuro-Oncology Advances

    2023 Aug 2;5(1):vdad096

    Retzer A, Baddeley E, Sivell S, Scott H, Nelson A, Bulbeck H, Seddon K, Grant R, Adams R, Watts C, Aiyegbusi OL, Kearns P, Rivera SC, Dirven L, Calvert M, Byrne A

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  • Report of the Jumpstarting Brain Tumor Drug Development Coalition and FDA Clinical Trials Clinical Outcome Assessment Endpoints Workshop (October 15, 2014, Bethesda MD)

    Neuro-Oncology

    2016 Mar;18 Suppl 2(Suppl 2):ii26-ii36

    Helfer JL, Wen PY, Blakeley J, Gilbert MR, Armstrong TS

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  • Factors Associated with Supportive Care Needs in Glioma Patients in the Neuro-Oncological Outpatient Setting

    Journal of Neuro-Oncology

    2017 Jul;133(3):653-662

    Renovanz M, Hechtner M, Janko M, Kohlmann K, Coburger J, Nadji-Ohl M, König J, Ringel F, Singer S, Hickmann AK

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  • Identifying Research Priorities and Essential Elements of Palliative Care Services for People Facing Malignant Brain Tumors: A Participatory Co-Design Approach

    Neuro-Oncology Practice

    2024;, npae052

    Salmi L, Otis-Green S, Hayden A, Taylor LP, Reblin M, Kwan BM

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  • Palliative Care and End-of-Life Care in Adults with Malignant Brain Tumors

    Neuro-Oncology

    2023 Mar 14;25(3):447-456

    Koekkoek JAF, van der Meer PB, Pace A, Hertler C, Harrison R, Leeper HE, Forst DA, Jalali R, Oliver K, Philip J, Taphoorn MJB, Dirven L, Walbert T
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  • Early Palliative Interventions for Improving Outcomes in People with a Primary Malignant Brain Tumour and Their Carers

    Cochrane Database System Review

    2022 Jan 6;1(1):CD013440

    Byrne A, Torrens-Burton A, Sivell S, Moraes FY, Bulbeck H, Bernstein M, Nelson A, Fielding H

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  • "I'm just waiting…": an exploration of the experience of living and dying with primary malignant glioma.

    Support Care Cancer

    2014 Feb;22(2):389-97

    Philip J, Collins A, Brand CA, Moore G, Lethborg C, Sundararajan V, Murphy MA, Gold M

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  • Palliative Care Intervention Trials for Adults Living With Progressive Central Nervous System Diseases and Their Caregivers: A Systematic Review

    Journal of Pain and Symptom Management

    2022 Jan;63(1):e88-e110

    Leeper H, Cooper D, Armstrong T
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  • European Association for Neuro-Oncology (EANO) Guidelines for Palliative Care in Adults with Glioma

    Lancet Oncology

    2017 Jun;18(6):e330-e340

    Pace A, Dirven L, Koekkoek JAF, Golla H, Fleming J, Rudà R, Marosi C, Le Rhun E, Grant R, Oliver K, Oberg I, Bulbeck HJ, Rooney AG, Henriksson R, Pasman HRW, Oberndorfer S, Weller M, Taphoorn MJB; European Association of Neuro-Oncology palliative care task force
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  • Death Anxiety Interventions in Patients with Advanced Cancer: A Systematic Review

    Palliative Medicine

    2018;32(1):172-184

    Grossman CH, Brooker J, Michael N, Kissane D
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